Fair   60.0F  |  Forecast »

Eczema in Kids: A Chelsea, Michigan Teen Shares Her Story

This chronic skin disease that affects how millions of children feel, think, sleep, look – even what they do and wear. Take a closer look at this condition through a Washtenaw County kid's eyes.

(page 3 of 3)

Sweat is a trigger, making sports tricky. Take soccer. A kid with hay fever out in the field is miserable. Then, add those abrasive shin guards.

That's one reason Jacquelyn had to quit. Volleyball's worked so far – though the kneepads can cause outbreaks. And skiing, which she's done since age 3, isn't too bad. Cold air helps her skin, and she removes layers if she needs to.

Puberty's brought other skin challenges, like shaving and bra elastic.

Her wardrobe has lots of cotton linen. "Sometimes, I try to purposely pick an outfit that doesn't show everything." But this summer, she did start wearing more shorts and tanks – a big step. "I've gotten a lot better about that."

Support

Meeting other kids with eczema has helped. With her mom and older brother Nat, 16, Jacquelyn has attended NEA conferences, which include workshops for parents and a Kids Camp.

"It's just really nice to be around a group of people who know why you're doing this. They know everything."

Mom can't say enough about the NEA being a lifeline, too, like its online support forum, "The Scratch Pad," and long-distance help from staff.

"I've called them over the years and cried," she says. "They're very helpful and supportive and compassionate."

Last April, Jacquelyn attended her first Teen Camp, where she made new friends – and got advice for high school.

"People are gonna be mean and they're gonna say things they don't mean," they told her. More so, she's dreading having to explain, over and over, though she knows she has to.

"You're in charge of the way you take something," she says. "You can be so upset about it and it can bug you. Or say 'whatever.'"

Peers have been unkind in the past. In kindergarten, she recalls, "People wouldn't hold my hands. They thought, 'Oh she looks terrible. If I touch it, I'm going to get it too.' It's not contagious. Still, they didn't want to interact with me. It hurt my feelings. And just made me feel neglected."

Luckily, bullying hasn't been a problem. "I'm amazed: Kids tend to be more forgiving than adults," Froczila says. "I'm surprised with what people at the grocery store say." Like suggesting Jacquelyn use lotion or sunscreen.

"People try to be nice about it," Jacquelyn says. "Just the pity – people say 'I feel bad for you' or 'You poor thing.'" But she'd rather not be defined by it.

A book series called Under My Skin has helped, too. She loves that it shows kids with eczema like hers. It irritates her when ads or websites tiptoe around it.

"That's the truth," she says. "I think that people get scared of the way that we look." But that kind of public awareness is key.

"That brings research dollars," Dunn explains. "There's a misnomer that it's just a little rash. It's much more than that."

Looking ahead

She's only 13, but Jacquelyn seems like she's in a great place. "Now that I'm older, I think I'm more accepting that this is the way I am," she says.

Her doctors, family and friends have played a strong role in that.

"They just never were mean to me like some people. They're just a lot nicer about it. I know that they care, and they're going to love me either way."

Says mom, "Her dad and I want her to have as much of a normal childhood as she can, and experience the things that she wants to."

That, of course, comes with future worries. Like dating. "Jackie itches when she is nervous, so I am not looking forward to the nerves," Froczila says. Career choices can be limited, too, based on triggers. But Jacquelyn – who thinks it'd be cool to be a doctor, lawyer or interior designer – doesn't see her eczema as a limiting factor.

"Which is wonderful. And scary," Froczila admits. "An adult has to let go. Your instinct is to always try to fix it or help her.

"She informed me last night that I need to trust her, and she can take care of it."

Old to new | New to old
Oct 4, 2012 09:25 am
 Posted by  rebblondy

My daughter is 12 and has had eczema pretty much as long as I can remember:( This story hits home on so many fronts. I would love for you and my daughter to become pen pals so she has more support as no one understands this like someone else who has it.

God Bless your family

Oct 16, 2012 04:40 pm
 Posted by  yfitch

I went through what your daughter went through. I've seen Dr. Hanifen the best Eczema doctor in the world and he told me I'd never be able to shave, etc. He also said that he hadn't seen a case as bad as mine that wasn't home schooled. Pantene Pro V irritated my scalp and made me lose my hair. I did the UV treatment too, but actually did more harm than good because I was allergic to eggs and I got a crescent each time I went. Figuring out my allergies, relaxing, and hypnosis in high school over time I now need a normal life. Email me at eveyswan@live.com if anyone wants to talk.

Oct 17, 2012 10:52 pm
 Posted by  MAS

I read the story as I have a 6 year old daughter that experiences eczema. We have been successful in treating eczema with the indications the Dermatologist has provided on how to apply the medicated creams (have tried several, last one lipid containing); however we added our own procedure of applying starch on top of the cream. The starch forms a layer that prevents the medicated cream from getting onto the bandage or clothing. This way the cream is fully absorbed by the skin. This has worked as a miracle and I fully recommend everybody to try. The recovery is so fast that you see results next morning. It is important to constantly maintain the rest of the skin with moisturized cream to avoid eczema moving into in new areas.

Add your comment:
Advertisement

More »Latest Articles & Blog Posts

Passport Rules for Kids

Passport Rules for Kids

If you're planning on traveling with your family outside of the country, they'll need a passport. Find out what you need and how to get passports for children.

Tips for Saving Cash on Flights

Tips for Saving Cash on Flights

Find out how your family can save money when flying abroad and in the country.

Tips for Traveling Internationally with Your Children

Tips for Traveling Internationally with Your Children

Thought about taking your kids for a trip abroad? You should! Here are tips to help make your cultural excursion easier – and cheaper – than you might think.

Staying Home Alone: How to Know When Your Child is Ready

Staying Home Alone: How to Know When Your Child is Ready

Whether you just want to run an errand or need to hit the gym for a break, it could be time to let your tween stay home alone. Here are a few ways to know your kid is prepared.

Craft Roundup: Get Ready for the Beach

Craft Roundup: Get Ready for the Beach

Whether you're hitting the pool or lake, southeast Michigan is packed with watery summer fun. These projects are inspired by (and ready for) this very topic!

Social Savvy: Raising Kids Who Can Make Connections

Social Savvy: Raising Kids Who Can Make Connections

At each stage of development, there are things parents can do for their kids to help them with social skills and making friendships.

Explore the Grand Canyon in Arizona

Explore the Grand Canyon in Arizona

If you haven't seen the wonder that is the Grand Canyon, you owe it to yourself and your kids to go.

Advertisement
Advertisement
Advertisement