A rare but serious health condition is cropping up in young children, and parents are understandably worried. Cases of acute flaccid myelitis – aka AFM – have been increasing since 2014, with numbers reaching 400 confirmed cases by late 2018, the Centers for Disease Control and Prevention reports.
This is a very small percentage of the population, but it’s causing concern – especially with a possible case here in Michigan being investigated as of mid-October. Among the symptoms are “sudden onset of arm or leg weakness and loss of muscle tone and reflexes,” the CDC notes.
The condition, which most commonly affects kids, impacts the spinal cord and can cause neurological damage with long-lasting effects. Problems including paralysis, trouble breathing and, in very rare cases, death have drawn some comparisons of AFM to polio in children.
While experts emphasize that the risk isn’t high, it’s important to get educated about AFM, learn what to look for and know how to best protect your children.
What causes acute flaccid myelitis?
One of the most complicated issues surrounding AFM is that doctors and researchers have yet to identify its cause, says Banu Kumar, division chief of pediatric hospital medicine at Children’s Hospital of Michigan in Detroit.
“This is a neurological condition that is pretty rare but can be serious,” Kumar says. She notes doctors first began seeing some cases in the summer of 2014.
There had been a lot of respiratory illnesses in children that year, and some of the cases progressed to include neurological symptoms, including weakness of arms and legs, facial muscles, slurred speech and difficulty swallowing.
“We are not sure if it’s a germ that is causing it or if the virus is triggering an immune response that causes the neurological symptoms.”
The CDC adds that “viruses and environmental toxins” are among the “possible causes” for AFM.
A slowly but surely growing issue
Kumar says there were approximately 120 cases seen in 2014, but in 2015 and 2016 few cases were noted. In 2018, though, as of October, there were already been 87 reported cases around the country.
Despite the uptick, the CDC estimates that less than 1 million people in the United States will be diagnosed with AFM each year.
Symptoms to watch for
The CDC warns parents to watch for symptoms such as arm or leg weakness that come on quickly.
Patients also exhibit loss of muscle tone and reflexes and could have facial weakness, difficulty moving eyes, drooping eyelids, difficultly swallowing or slurred speech.
According to the CDC, acute flaccid myelitis shares symptoms with other neurological diseases like transverse myelitis and Guillain-Barre syndrome.
Getting a diagnosis
To diagnose AMF, doctors test the patient’s nervous system, particularly those areas impacted by muscle weakness. The doctors also do MRIs, blood tests and spinal taps to rule out other conditions and make a positive AFM diagnosis.
Kumar says for patients with AFM, the prognosis is dependent upon how much neurological damage is done. She says patients make a full recovery while others live with long-term neurological effects.
“That’s another really difficult thing about AFM – it doesn’t impact everyone the same way,” Kumar says.
According to the CDC, there are several viruses that can lead to AFM or other similar conditions. Those include polio virus, West Nile Virus and adenoviruses.
Guarding against acute flaccid myelitis
Kumar notes there are things that parents can do to make sure their children are protected against those viruses.
She says since West Nile Virus is transmitted by mosquitoes, parents should also protect their children by taking preventative measures against bug bites.
Kumar warns parents to keep their children home if they are sick to avoid the spread of any germs.
“We don’t want parents panicking about this condition,” Kumar says. “Not every respiratory illness will progress into AFM. Compared to the number of cases we saw in 2014, the cases are far less.”
She adds, “It seems to be dwindling down, and we are seeing AFM much less than we did. Only if the child is having neurological symptoms do we worry about AFM.”